Cystic Fibrosis in Children
What is Cystic Fibrosis?
What to Expect at Your Visit?
Meet Our Providers
Cystic Fibrosis Symptoms in Children
Common symptoms of childhood cystic fibrosis may include:
- Difficulty gaining weight or growing
- Frequent lung infections
- Intestinal blockages
- Loose, greasy stool
- Persistent cough
- Salty-tasting skin
- Wheezing or shortness of breath
CFTR-Related Metabolic Syndrome (CRMS)
CRMS is a condition where a newborn screening suggests possible cystic fibrosis, but follow-up tests are unclear. This happens when sweat test results fall between 30 and 60, and fewer than two CF gene mutations are found. Kids with CRMS usually have milder symptoms than those with cystic fibrosis, but regular check-ups with a CF care team are still important.
Cystic Fibrosis in Infants
Cystic fibrosis can be diagnosed at birth through a newborn screening. Infants may present with symptoms such as meconium ileus – a bowel blockage in newborns that occurs when the baby's first stool is too thick and sticky, preventing it from passing through the intestines – or failure to thrive. Early diagnosis allows for timely interventions to support healthy growth and development.
Attending School with CF
Cystic Fibrosis School Services:
- Visiting School with Your CF Team
- IEP and 504 Plans
- Elementary through High School Accommodations
- College Accommodations
Cystic Fibrosis Family Advisory Board
The Cystic Fibrosis Family Advisory Board includes family members who work with CF staff, providers and counselors. They focus on improving patient and family care, developing quality improvement plans and supporting families with new diagnoses.
